Ouch, That’s my Spine!
Holy heck. This month just needs a do-over. I avoided the hospital in December, but the payoff was an explosive month. A hospital stay. Massive progression in my body. Being told my brain had improved and finding out I have progression there. Spinal taps and blood patches… My spinal tap was a pretty uneventful procedure. They even showed me my lovely cerebral spinal fluid which was clear and looks like water. They had sent me...
All Clear-ish
My cerebral spinal fluid was clear and negative for cancer. I am now nursing a massive spine headache thing apparently I am fired at laying flat properly for 24 hours. This does not discount what women go through when they find out they have leptomeningeal metastases. It is a progression I am scared of, I am/was also scared of brain mets. You have to deal with the cards handed to you. Everything already going on has been too much, and...
Head in the Dirt
Apparently an important note was missed on my brain MRI, so many celebrations have become sadness. We are scheduling a test as soon as possible to negate whether or not I now have leptomeningeal carcinomatosis. I kind of feel like I am being yanked around a bit. Google’s definition of leptomeningeal carcinometastasis: Leptomeningeal carcinomatosis (LC) is a rare complication of cancer in which the disease spreads to the...
Ch-ch-changes, Sadness and Hope
My day started with my heart falling out of my chest through the floor when I discovered Holley Kitchen died. She had been a voice for metastatic breast cancer, her video helped a lot of people understand what our lives of being a #lifer are all about. I try to education people through this metastatic breast cancer blog, but it is amazing how many people truly don’t understand MBC. Two more lovely children that will grow up...
Worse, Worser, oh SH**
Just when you think everything is hunky dory you land your butt in a hospital bed. Ok, I didn’t think everything was hunky dory. I had been as sick as a dog from this crazy Tykerb stuff and found out why you can’t have diarrhea for weeks on end… I had already questioned how much longer I could handle it… I learned that when you have this much diarrhea, you lose important nutrients. Ones like say…...
Banana!
I want to tell you I had the most magical Christmas ever, filled with sparkling snow (there was tons of snow, I think my dad, older brother and Mike all took turned shoveling the front walk on Christmas Day). That all of my wishes and dreams were fulfilled and la-dee-da, but that wasn’t quite how it went down. I started Tykerb back up Saturday before Christmas since I was on my Xeloda break. My first couple of weeks of Xeloda...