Apparently an important note was missed on my brain MRI, so many celebrations have become sadness. We are scheduling a test as soon as possible to negate whether or not I now have leptomeningeal carcinomatosis.
I kind of feel like I am being yanked around a bit.
Google’s definition of leptomeningeal carcinometastasis:
Leptomeningeal carcinomatosis (LC) is a rare complication of cancer in which the disease spreads to the membranes (meninges) surrounding the brain and spinal cord. LC occurs in approximately 5% of people with cancer and is usually terminal
Added note: I was shocked and tired when I wrote this, when you tell people you have terminal cancer on top of terminal cancer it is confusing. Leptomeningeal metastasis is a very tough form of breast cancer metastasis to treat. There are a few trials out there and more helpful that I am HER2+ in most of my mets – as that can sometimes help treating this kind of metastasis. When you have terminal cancer, the cancer eventually spreads somewhere that kills you. Brain and liver are top terminal places for breast cancer – now I have cancer in both of those places. So I already have dice rolled in tough places, but we are scared for the day it moves somewhere or somehow we can’t beat it back. This is one of those tougher places.