Branches Around my Heart
How to live hasn’t been something I have struggled a lot with. How to find time t0 do all of that living seemed to be the question. This week was the first time I felt like I truly fell down. I fell, and am nursing my hypothetical bruises. The bruise has branches up around my heart where they sit. Dark veins, telling me to give up, I don’t want to give up, but it murmers in one tired ear while my fingertips brush it away....
Chemo in my Braaaaiiiinnnsss
The week after my Kadcyla infusion is my exhausted and sick week, luckily I kept up on my anti-nausea medications and this week it was the first week that I didn’t throw up from it (hey, little things like not trying to send your intestines flailing into the toilet are what can bring this cancer patient joy). This week also left me fried and sleeping a lot, thus Mike decided we needed more help around the house doing some of the...
Oh My I Have an Ommaya!
I have had a week of being at the hospital pretty much every single day. Whew. I must loooove hospitals (and hospital food – actually my cancer hospital has two pretty decent restaurants in it, so you can get pretty much whatever you want and it actually tastes good). It started out with me meeting the really nice brain/spine guy (I need to find out what his official title is, maybe it is Oncologist and I just keep adding that...
Seattle, Home and an Ommaya Reservoir
Seattle’s weather was quite lovely for our visit, of course it was super lovely on the day that we raced to appointments (stuck inside, looking outside at the sunshine through windows). I have no idea how it was conceived of booking appointments at hospitals all over Seattle 2 hours apart (of course I realized quite how far as we rode white knuckled in the back of an Uber car hoping to make it to the next one “in...
It’s a Pig
I guess I should be relieved that there were cancer cells in my cerebral spinal fluid, especially after my previous post. In reality I am – it would have been frustrating to wait for them to do another one and keep doing them until it finally showed up. At the same time it is so emotional to know I have leptomeningeal metastases, also called leptomeningeal carcinamatosis. If you had asked me when I first found out that I was...