Darn Good Lemonade
Making Lemonade From My Pair of Lemons, Diagnosed at 30 & Life Beyond Breast Cancer

Riding the Merry-Go-Round

My breast cancer awareness shirt and team scarf.

So I have been trying to avoid the topic of side effects because I kept hoping they would just go away, turns out I am more likely suffering from issues with the Metformin (or some really crazy placebo effect, but realistically, I don’t think I got the placebo). I am getting crazy dizzy spells that make me feel disoriented and out of it. I also generally haven’t felt well, tired, cranky, nausea – just overall ick. Which has been driving me crazy because I am supposed to be feeling better rather than feeling worse! After fighting my cold for a week my body decided Thursday afternoon that it had had it. The room was spinning at work so I went home to lay down. I felt better after a nap, but when I woke up the next morning I was dizzy and exhausted and just didn’t feel right.

I gave in and called the nurse (I feel like a complainer because the only time I call is when I am having problems, but I guess it would be strange to just call to say hello and that everything is dandy). I had also had a sharp pain in my upper arm on the inside where my lymph nodes are which didn’t have me super excited. I wore my lymphedema sleeve this week in case it was lymphedema (and the pressure from the sleeve helped the pain). It turned out that the pain is an axillary web (one of my blog friends had this happen after her mastectomy, so I had seen it, but I guess radiation can also get it going). Stretching and massaging the area that hurts is supposed to get it to eventually work itself out.

They are having me stop Tamoxifen for two weeks (which scared the crap out of me), but they said that Tamoxifen is something that you have to take for the long haul and because I am in the study I can mess up the study if I stop taking the Metformin/placebo. So we are trying to isolate what is making me feel crappy (on top of being sick). The Metformin or the Tamoxifen. Apparently all of the side effects I described are not normal for Tamoxifen, and when I described them to my friend who has type 1 diabetes – they all sound like side effects that come with unregulated blood sugar (interesting because I thought Metformin regulates it, but maybe if you don’t need it, it makes it wacky).

We had bought tickets to the Real Salt Lake soccer game Saturday and I decided to go. The weather was awesome, a very nice and warm fall day. My friends gave me the breast cancer awareness scarf from last year’s game, so I had my very own scarf for my first soccer game. We had a bunch of friends going and my brothers also bought tickets to come. The game was part of the breast cancer awareness series of games, so I figured I would wear the breast cancer awareness shirt to go along with the scarf (I had a woman stop me and ask where she could get one for her friend).

My hair these days is a bunch of tiny little curls that I smooth out with some gel, but it is a bit unruly. I can’t quite decide what to do with it yet, for now I am just letting it grow and do its thing.

Me, my brother Dereck, my brother Justin and my sister-in-law Tara.

Mike and I. :)








  • jenh

    side effects suck.  hope you get this figured out and start feeling better soon.  also hope it is not the tamoxifen.  I was off for 3 weeks for my final surgery and my hot flashes pretty much went away.  

    • http://www.darngoodlemonade.com Mandi

      The nurses response about hot flashes was that it meant it was working (great! Haha!). I get a break from hot flashes while we sort out this med thing though. :)

  • Medicine-woman (Mom)

    Yup. even if you have diabetes, metformin can trigger drops in your blood sugar.  It is good to keep some hard sugar candies (or some other type of sugar, just one or two pieces) followed by a little protien (a few nuts or string cheese).  Yogurt is good because it has the sugar and the protein.  After you have been on it longer, things will probably settle down.  Make certain you are getting enough fluid also!  (Don’t overdo the snacks when you are feeling dizzy and crappy or you will put on weight, and if you are still on neurontin, you are taking 2 meds that can make you dizzy so the effect will be somewhat exponential.  Hopefully will improve in a couple of weeks!  Here’s hoping!  

    • http://www.darngoodlemonade.com Mandi

      I am off the Nuerontin, they wanted to blame that one first (don’t blame them), but I am only on a few medications, so it isn’t too hard to single them out. I guess I just didn’t expect drops in my blood sugar (and the side effects that come with it), so having them happen was a bit surprising. I have yogurt for breakfast everyday, it looks like I need to figure out an afternoon snack. I up the dose in two weeks too… :)

  • Medicine-woman (Mom)

    Oh, and I love that T-shirt!

    • http://www.darngoodlemonade.com Mandi

      Scott and Mel bought it, seemed like the right occasion to wear it.

  • A2sassygal

    I’m sorry you are having such bad ES.
    Hopefully you start feeling better soon
    Love the Tshirt !!! And the pics. You have the greatest smile
    Debbi  atoosassygal.blogspot.com

    • http://www.darngoodlemonade.com Mandi

      Thanks Debbi! :)

  • http://bumpyboobs.wordpress.com/ Catherine

    Hi Mandi, I hope these side-effect subside . . . but kinda hope even more that it’s not the tamoxifen since it’s a long-term fighter in the battle.  From the other comments it sounds like you’re figuring how to manage the dizzies.

    Also – I have to say this: You look fantastic! Yay for hair!

  • http://pinkunderbelly.wordpress.com/ pinkunderbelly

    If you end up back on Tamoxifen and are still battling hot flashes, ask about Effexor. I started taking 37.5 mg a day and it has helped so much. Instead of a dozen hot flashes I now get one or two a day. And the shirt totally rocks! Maybe we can come up with a funny tshirt about the hot flashes, too!

 

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