Mandi’s Story
Susan G. Komen featured a documentary of Mandi recently. I have a hard time watching it without breaking down in to tears, but it is a beautiful tribute to my wife. My biggest hope is that this video helps bring awareness to metastatic breast cancer as it is the reason she is not here with me today. So many amazing people are lost to this terrible disease and we need a cure now before we loose any more to this nightmare. Cancer does...
Live Forever
Mandi, you will live forever through me and all the people you have touched and inspired in your life. This is not the end, only the beginning of another chapter. I will never be the same without you, and will forever be the love of your life. You were my best friend, and I shared the most precious memories I will ever have in my life with you. Sleep in peace now my love, there is no more pain. I could write several books about my...
Vacation in the keys. – Mandi’s last blog entry
Booking a warm tropical vacation is difficult when you are trying to schedule around your husband’s work, appointments, weather, making sure I would have oxygen with me, just making it all work out has been a challenge. I managed to book a hotel and plane tickets last minute (my world of vacation rentals didn’t work out so well… our hotel is very nice though and we have a kitchen, so Mike has been able to cook dinner...
What Happens When Your Lung Collapses?
That is the question that has played itself over and over in my brain the past few days. Will it hurt? Will I die? Will I be O.K.? I know people live without a lung, I know it is possible, and I know my left lung is on its way out. When? I don’t dare to guess. I imagine when I fully go on hospice it will be sooner rather than later. I still have the drain in it for my sanity, but it isn’t draining anything worth talking...
Another Day Another Dollar
Last week I saw all of my not-main-oncologist doctors. My Pulmonologist, my Palliative Care doctor and my team that does my intrathecal chemo. I was also getting my labs drawn so my oncologist could see what Neupogen was doing to my white blood cell count so we could plan on when and how to add Affinitor. When I saw my Palliative Care doctor I mentioned that my tummy had been causing me pain, but that my pain meds didn’t seem to...
Hiding Under a Rock
I imagine there are a few people who have been wondering where I have been hiding (under a rock, the answer is under a rock). Utah is full of rocks, ahem mountains, and for the last bit I have just been adjusting to what my life looks like right now (new chemotherapy regimens, spending time with the family and that whole rock thing). I know people fret, but there is no need to message me if the blog isn’t updated. I promise I...