Darn Good Lemonade
Making Lemonade From My Pair of Lemons, Diagnosed at 30 & Life Beyond Breast Cancer

Never Say Never

I had to cancel my haircut because we had to get a furnace installed that day. I really need a haircut.

It seems like the excitement about completing my cancer treatment and moving back into normal life is supposed to be the next stage for me, but alas, a wrench has been thrown into my wheel of life. My lady parts are trying to kill me.

I am starting to feel like a drama queen.

My pap that I had completed when I was getting my lump checked came back abnormal in December 2010. My doctor didn’t feel like my abnormal pap required any additional attention at the time (we also had the very obvious lump in the breast in the front of our minds). I had a three year lapse before that pap, I kept putting off getting it done, which is a big no-no (ladies, mammograms yearly after 40, paps yearly by 19)! I only actually had the pap done because I needed to see my doctor about the lump… I waited to have my follow up pap until I was off work recovering from breast reconstruction. I knew there was a chance it would come back abnormal, and I didn’t want to deal with it until after I had finished everything else.

My doctor told me I would get a postcard if things were fine or a phone call if there were concerns. My doctor called me thirty minutes after I got to work on my first day back in the office after surgery. I broke down, I tried to keep it together, but I couldn’t. I answered the phone telling my doctor that I knew it was bad news because she was calling (last time she called me I answered saying I knew it was cancer and just wanted to know what kind).

She recommending that I get a colposcopy due to atypical cells that showed up in my pap, two years/tests in a row. I have had atypical cells before many years ago and everything turned out to be ok, but I had also had a benign breast lump before. My heart dropped out of my chest. My brain doesn’t do “this is an unlikely scenario” instead it jumped to “oh my, do I have to do cancer treatment again? I gave away all of my hats…” Normally I would just figure “meh” I will get the biopsy and everything will be fine, unfortunately my brain doesn’t comprehend normal biopsies anymore.

I had heard and read that young cancer survivors sometimes get multiple cancers (my family doctor suggested that I start getting my colonoscopy at a younger age due to my overall increased chance of additional cancers). I read that I have a 38% increase in the likelihood of skin cancer (both of my parents have had skin cancer, to me, at some point, skin cancer is most likely guaranteed at some point, but this is more treatable if monitored and treated early), radiation isn’t skin friendly. I also know now that chemo can increase the likelihood that cervical cancer can rear its ugly head, but with cervical cancer, like most breast cancers, regular testing and early diagnosis can make it a bit easier to treat and increase the likelihood for survival. I will never in my life say that any cancer at any stage is “easy.”

Mike and I have now been thrown into the emotional whirlwind of the possibility of facing another cancer. This also means I start with a new group of doctors at Huntsman. They group by specialty area, and this is a different specialty. I have had unusual bleeding and pelvic pain over the past year, but I just attributed it to the crazy hormonal changes that I had with chemo-induced menopause, coming out of menopause, and now Tamoxifen. Who knows, those changes could cause changes to my cervix… The soonest they could get me in was the 6th of February for the colposcopy (I am having it done at the Huntsman Cancer Institute because it takes weeks to get in to see a doctor if you have a cancer diagnosis, let alone just checking for cancer – and it was going to take just as long to get in to see a regular gynecologist).

Cross your fingers for me. I delayed posting about this because quite frankly, this topic is a lot more embarrassing to me than my breasts. I also needed some time to get my head on straight about the real possibilities vs. plain old fear.







  • Teresa

    Fingers crossed for you. Also, for what it’s worth (maybe not much because I’m..ahem…”much older” than you)… I had a very similar experience both before and after my breast cancer and it all turned out fine. Our bodies just get kinda messed up through all this and test results go (prepare for a very scientific/ legalistic/ medical term) berserk.   On another note–why the “F” isn’t there an express lane for we “been there/ done that” cancer patients??? Why must you wait ’til February 9th?? (strictly rhetorical, of course). But really, if Disneyland can launch “express” passes…hospitals should be able to as well. The waiting is so crazy-making!! (sorry for all these intense legal/ medical terms I’m using. ;-) ).   All the best to you–I’m thinking you’ll be just fine!  Because you deserve that.

    • http://www.darngoodlemonade.com Mandi

      In its own way, that is comforting. I was curious about how much breast cancer could impact those tests. I am just a bit freaked out by recent studies – but I donated a lot of information to genetic research.

      The rest of your response is spot on, when I was scheduling my appointment I BEGGED to get in earlier, explaining that I just needed to know and to pull my record. The nurse was certainly nicer to me after she pulled my records, but she didn’t get me in any faster.  I do understand that those with identified cancer should certainly be seen before I am. My sanity needs the final result to deal with it either way. Waiting is really the hardest part (from my personal experience).

      Either way, it is a fit reminder for ladies to get their paps, after freaking out everyone out about breasts. Early detection is key.

  • Jennifer DuBois

    Hi, Mandi. Like Teresa, I am also… ahem… “much older” than you and have been through this situation in the past. I had a period of time where my paps came back abnormal and had two colposcopies. Both came back OK.

    Of course, this was pre-BC. Certainly your concerns are quite valid given that you have been through so much. I would definitely react the same way. As a matter of fact, I am having a complete hysterectomy later in the spring just to decrease my chances of other cancers – but again – I am at a stage of my life where I really don’t need those “parts” anymore.

    But back to you, sweetie… I know it’s much easier said than done but try not to worry too much. Abnormal paps are probably pretty common for someone who is going through treatment. Abnormal cells seem to crop up when our immune systems are low and we’re under stress — at least that was the case for me. A colposcopy is a piece of cake compared to what you’ve been through. I have confidence you will breeze through it just fine and your results will be OK.

    Hang in there. And keep us posted… Jen

    • http://www.darngoodlemonade.com Mandi

      Jen, you and Teresa are making me feel so much better about the results (and the test). 

      I have certainly considered the complete hysterectomy, but at 32 I have a hard time taking it out unless I know it is a real issue (plus I have no desire to have another surgery for a long long time).

      For now I will just wait and see, but I really really appreciate the feedback!

  • http://twitter.com/Bumpyboobs Catherine Brunelle

    Fingers crossed. Really tight.

    • http://www.darngoodlemonade.com Mandi

      Thanks Catherine! :)

  • Pinkunderbelly

    I’ll tell you what my sweet friend Amy wisely tells me when I try to board the freak-out train prematurely: Don’t borrow trouble.

    That said, I know how incredibly hard it is to not freak out and assume the worst. For now, I’m keeping my fingers crossed, thinking positively, and assuming the abnormalities are from treatment side effects, nothing more.

    • http://www.darngoodlemonade.com Mandi

      Amy is wise.

      I used to be such a calm person about health issues, now I feel a bit like a hypochondriac… every muscle twitch, headache, fever gets me going. I was going to ignore the lump, but my friend got on my case and held me hostage until I made an appointment.Â
      I am past the freak out mode, but I definitely had a couple of days of wasted energy and extra stress.

  • http://www.nancyspoint.com/ Nancy’s Point

    Good Lord, it’s perfectly understandable for you to be stressed out. I’m sorry you have this latest round of stuff to worry about. My fingers are definitely crossed for you too.

    • http://www.darngoodlemonade.com Mandi

      Thanks! :)

  • Nicelady

    Another version of not  boarding the train – Don’t put demons where none exist. There are all kinds of reasons for an abnormal pap, and also for cervical problems. Please banish “embarrassment” from your reaction.  

 

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