The week after my Kadcyla infusion is my exhausted and sick week, luckily I kept up on my anti-nausea medications and this week it was the first week that I didn’t throw up from it (hey, little things like not trying to send your intestines flailing into the toilet are what can bring this cancer patient joy).
This week also left me fried and sleeping a lot, thus Mike decided we needed more help around the house doing some of the stuff I would do (and help take care of the puppy, who I haven’t had a lot of time for her lately) lack of attention means more accidents, and accidents are no fun when you are both exhausted. Mike asked who we should ask for help and I nominated my mom, since she is already a big caregiver and helps me a lot, she also wants to help as much as she can.
Mom accepted and is now helping me get stuff done, which is nice.
It has been an exhausting couple of weeks, thus my total lack of updating. I have been sleeping quite a bit (some days I swear I could sleep 24 hours). I am slowly getting some energy back.
Getting intrathecal chemo chemo in my ommaya port
I have had blurry vision and more pain in my spine. At my appointment today my brain/spine oncologist mentioned that if my cerebral spinal fluid came back as positive for cancer again, we will switch the intrathecal chemo (this is after 6 infusions). Ugh, failing intrathecal chemos already. There aren’t that many choices for chemo you can take intrathecally.
Photo done with the team at www.healcourageously.org
So here is my update: I am sick, sore and tired. <3
