{"id":3544,"date":"2016-01-12T19:11:27","date_gmt":"2016-01-13T02:11:27","guid":{"rendered":"http:\/\/www.darngoodlemonade.com\/?p=3544"},"modified":"2016-01-12T19:19:12","modified_gmt":"2016-01-13T02:19:12","slug":"3544","status":"publish","type":"post","link":"https:\/\/www.darngoodlemonade.com\/index.php\/2016\/01\/12\/3544\/","title":{"rendered":"Ch-ch-changes, Sadness and Hope"},"content":{"rendered":"

My day started with my heart falling out of my chest through the floor when I discovered Holley Kitchen died. She had been a voice for metastatic breast cancer, her video helped a lot of people understand what our lives of being a #lifer are all about. I try to education people through this metastatic breast cancer blog, but it is amazing how many people truly don’t understand MBC.<\/p>\n

Two more lovely children that will grow up without their amazing mommy who tried to help get people to rally around curing stage IV breast cancer.<\/p>\n

\"If<\/a>

If you would like to help Holley’s family, please visit: https:\/\/www.gofundme.com\/bas5g8<\/a><\/p><\/div>\n

My morning involved an early appointment trying to get my port accessed so I could get my mugga done. A mugga uses radioactive tracers to check the function of your heart. I asked for a do-over after my echo on Monday had me at 45% ejection fraction, which is considered heart failure. Medications like Herceptin, Perjeta and Tykerb have a history of damaging the heart. This means I can’t have those drugs if my heart isn’t working well enough.<\/p>\n

I also had the long awaited quarterly checkup on my brain. OMG MY BRAIN. I had dropped everything in an attempt to save my brain, but guess what?!? My 4th “tumor” – they were sure if it was one – was GONE. The other 3 were at least half the size and nothing grew anywhere that warranted further treatment or a response from radiation oncology. So I am on a 3 month reprieve and my oncologist may really let me stay on Xeloda. *fingers crossed*<\/p>\n

Which means I get a PASS. It worked, whatever it was. Radiation, maybe Xeloda, but it worked!<\/p>\n

Now we can go back to focusing on getting my body under control with a watchful eye on my brain. A mean watchful eye.<\/p>\n

\"IMG_0993\"<\/a><\/p>\n

My updated heart scan and brain scan also opened up my eligibility for the trial I wanted to do so very badly having found out I had potentially reachable tumors.<\/p>\n

So now I GET to gather my records next week and send them over! I may get to do it!!!<\/p>\n

OMG.<\/p>\n

A lonely life in Washington D.C. Area has my name possibly on it.<\/p>\n

Doors closing and doors opening and I am lost for words. I am filled with joy, sadness and hope.<\/p>\n","protected":false},"excerpt":{"rendered":"

My day started with my heart falling out of my chest through the floor when I discovered Holley Kitchen died. She had been a voice for metastatic breast cancer, her video helped a lot of people understand what our lives of being a #lifer are all about. 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