{"id":3157,"date":"2015-06-01T20:50:39","date_gmt":"2015-06-02T02:50:39","guid":{"rendered":"http:\/\/www.darngoodlemonade.com\/?p=3157"},"modified":"2015-06-01T21:58:57","modified_gmt":"2015-06-02T03:58:57","slug":"no-disassemble-mandi-5","status":"publish","type":"post","link":"https:\/\/www.darngoodlemonade.com\/index.php\/2015\/06\/01\/no-disassemble-mandi-5\/","title":{"rendered":"No Disassemble Mandi 5"},"content":{"rendered":"<p>As I move into my 6th month of chemo this year I am getting pretty exhausted. Each one compounds over the last. I am missing about 50% of my fingernails, my skin on my hands is peeling off, I can&#8217;t feel half my feet. I wake up in puddles of sweat when I do manage to fall asleep after getting my back pain under control (cancer is a blast).<\/p>\n<p>I am also discovering that I am living life as 50% of myself. I am 50% of myself at work. 50% of myself at home. I am never quite all of the way up because I am exhausted. I am pushing myself too hard to be the person I was rather than embracing the person I am.<\/p>\n<p>I don&#8217;t want to be chemo Mandi&#8230; I want to be healthy Mandi. Grrrrr.<\/p>\n<p>Chemo is beating back the cancer. Tumor counts move down. Cancer is held at bay. For how long? No one knows, but as long as the treatment is working I need to embrace the success, the forward momentum and piece together the\u00a0crumbles of what was my old life around me into some semblance of a really great life.<\/p>\n<p>I am not giving work everything I used to. I am too tired to think straight. Sitting in a chair at work hurts my back so much I also don&#8217;t know what to do with myself. When I am in pain I am grouchy, but I can&#8217;t exactly gork myself out on pain meds at the office. When I come home I need a nap or an extended rest period to be able to do anything functional at all the rest of the evening. I am cranky to my husband and friends because I am tired and in pain.<\/p>\n<p>Every time I go see a doctor about\u00a0ways\u00a0to improve my life they give me a list of things to do&#8230;\u00a0I then respond and tell them I don&#8217;t have time for them because of work I kind of get &#8220;that look.&#8221; That you have an incurable cancer, why are you working look? That you need to take care of yourself and your health\u00a0look&#8230; What usually follows is tears, frustration&#8230;<\/p>\n<p>I knew when I went down the chemo path that I was going to have a less normal life. That there were routes that would give me a more normal life, but the first two failed me and we were scared. Things are looking better right now. Hopefully we move back to a less topsy turvy option that gives me an extended reprieve after we finish what we started.<\/p>\n<p>I am going on full time disability, starting Thursday.<\/p>\n<p>I intend on trying to go back to work in a few months should everything go well. I am trying to get through what should hopefully be the last part of Taxotere. I am going to focus my energy on physical therapy and exercise programs to get my strength back up (I am winded from a few stairs these days). I am refocusing, healing. Taking a deep breath and reassembling.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>As I move into my 6th month of chemo this year I am getting pretty exhausted. Each one compounds over the last. I am missing about 50% of my fingernails, my skin on my hands is peeling off, I can&#8217;t feel half my feet. I wake up in puddles of sweat when I do manage [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":3159,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4,3],"tags":[],"class_list":["post-3157","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-life","category-updates"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v21.6 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\r\n<title>No Disassemble Mandi 5 - Darn Good Lemonade<\/title>\r\n<meta name=\"description\" content=\"I am 50% of myself at work. 50% of myself at home. I am never quite all of the way up because I am exhausted. 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