{"id":2838,"date":"2015-01-16T17:09:58","date_gmt":"2015-01-17T00:09:58","guid":{"rendered":"http:\/\/www.darngoodlemonade.com\/?p=2838"},"modified":"2015-01-16T17:16:29","modified_gmt":"2015-01-17T00:16:29","slug":"just-keep-swimming","status":"publish","type":"post","link":"https:\/\/www.darngoodlemonade.com\/index.php\/2015\/01\/16\/just-keep-swimming\/","title":{"rendered":"Just Keep Swimming"},"content":{"rendered":"

Today I met with my favorite Oncology Nurse Practitioner (I only have one, but she is still my favorite!), my oncologist was scheduled elsewhere (which I knew would be the case before my appointment). This week has been a more emotional one for us. I have been trying to wrap my head around how I managed to get ONJ so early and WHY. I point fingers at myself in 5 different ways. I drink wine, maybe my gums weren’t healthy… agggghhhh. I have some pretty solid teeth, I see my dentist regularly, heck, I have never even had a real cavity. I just don’t know on this one. My oncology office is just as baffled. This just doesn’t happen when you just barely start Zometa.<\/p>\n

Unless you are Mandi.<\/p>\n

I ended up getting a\u00a0lecture from my mom, Mike and my doctor about managing my pain (not the first time I have gotten one of these). I am trying to understand how you balance pain management, work, life, driving a car… you know… those things. So usually my method is avoiding taking “real” medication unless I am at home. Apparently this is not effective at actually making me comfortable. -sigh- I think I keep just hoping it will all go away. Hope hope hope. Also, rumor has it,\u00a0I am grumpy when I am sore, and I am a lot less grumpy when I am not sore. So now maybe you can ask yourself – if you see me and I am cheerful – did Mandi take her medication like she was supposed to, or is she just in a good mood. Muahahahaha.<\/p>\n

My NP ended up with a long list of questions to ask my oncologist. It sounded like the plan is to try to move me to Xgeva when my jaw heals. I guess the incidence of ONJ is a lot less on Xgeva, but it is still a biophosphonate, which can still cause ONJ. You also have to explain to your insurance company why you can’t have Zometa which is a bit of a battle. I see my oral surgeon this week so I can discuss it with him. My NP shuddered a bit when I described surgery to remove some of my jawbone… maybe I should be shuddering too.\u00a0I just want medications that kill cancer, but I wouldn’t mind keeping my teeth. Teeth are nice!<\/p>\n

We officially cancelled my Zometa infusion today (they put my IV in this morning since it was still on my chart – I definitely wasn’t going to be the one to officially cancel it and tell them not to place the IV). They took it out after it was cancelled.<\/p>\n

I am intrigued to find out where my tumor markers were this month when the labs come back (something we didn’t start measuring until I was officially metastatic). I have had some new pain in my ribs, we dug around in my PET-CT looking for spots there and didn’t see them in that scan (I figured they were “known” spots. Bah). Ribs aren’t a candidate for radiation, your lungs are in the way. Nothing verified. Who knows. At the moment the plan is to still try to give the Femara (Letrozole) more of a chance.<\/p>\n

On a happier note, my jaw feels tons better after being on antibiotics. I am not sure if the hole has healed at all or not (it is still definitely there).\u00a0I see the oral surgeon Wednesday and we will see if there is any progress! \ud83d\ude42<\/p>\n

Until I know more, I will just keep swimming.<\/p>\n

\"I<\/a>

I made this with my friend’s drawing. \ud83d\ude42<\/p><\/div>.<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Today I met with my favorite Oncology Nurse Practitioner (I only have one, but she is still my favorite!), my oncologist was scheduled elsewhere (which I knew would be the case before my appointment). This week has been a more emotional one for us. 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